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ebean

01.10.2007, 21:49
 

Help: After Chemo, hair grew back badly.. (Chemotheray & Hair Loss)

I went through surgery, full chemo for estrogen-based breast cancer (adyrmicin/cytoxin and taxol) and radiation locally. it's been 1 1/2 years since the end of treatment and my hair is a ghost of what it once was. (and i'm on tamoxifen now). sides are ok and back is acceptable but the front is uber-thin and see through and it really hasn't grown back at the temples except for some baby hairs that never seem to go anywhere. i finally gave it up to the short hair gods and just cut my hair very short - which helps the appearance a great deal.

Has anyone else here experienced this? I am at the beginning of this road (I'm now 49) and am interested in exploring medication that would help my hair fill in but nervous about anything that would muck with my estrogen issues.

I'd love some advice on what is acceptable to take and recommendations for a good dr. in nyc.

Many thanks.

bean


ebean is located in [NA] and he is available to meet: NO

Roxeli

01.10.2007, 22:59

@ ebean

Help: After Chemo, hair grew back badly..

If you're looking for a natural topical approach, I've read a lot of good things about emu oil.

Here are some links about emu oil and hair regrowth:

http://www.hairloss-research.org/EmuOilfrontalregrowth.html

http://ezinearticles.com/?Emu-Oil-for-Hair-Loss&id=543646

http://www.emu-oil.com/HairLoss.htm

I've bought some for my daughter from here:
http://www.pure-emu-oil.com/


Roxeli is located in [NA] and he is available to meet: NO

V

02.10.2007, 08:50

@ ebean

Help: After Chemo, hair grew back badly..

Since tamoxifen is an estrogen blocker, it is most likely the cause for you hair loss. You hair needs astrogen , and tamoxifen is blocking that estrogen, almost as if you were going through menopause with a very small amount of estroegn.

The drugs used to treat hair loss are for people with androgenetic hairloss whic is mediated by testosterone, and most likely isn't your problem. Besides, these drugs will alter your hormone levels whic would not be safe considering your history.

I have found some websites with more info on tamoxifen and hair loss and several of them mention the use of Rogaine, whic is a growth stimulant and does not alter hormones...perhaps you could talk to your doctor about this option?


http://www.breastcancer.org/treatment/hormonal/side_effects/tamoxifen.jsp

http://www.breastcancer.org/tips/hair_skin_nails/regrowth.jsp

http://www.drugs.com/cons/tamoxifen.html


I am so sorry you are going through this. Best Wishes.
V


V is located in [NA] and he is available to meet: NO

Chris

02.10.2007, 09:13

@ V

to Roxelli

Hi Roxelli, I went to the emu oil site you posted and am interested not only in the oil for the hair but for the gel caps you swallow. It says it helps people with Crohn's. I have ulcerative colitis, which is very similar to Crohn's. I'm going to try it and see if it makes a difference. As far as the hair oil, do you apply it everyday? Does it makes your hair look oily? I only wash my hair every other day since I get so depressed after it, so I wouldn't want to wash everyday.


Chris is located in [NA] and he is available to meet: NO

V

02.10.2007, 09:17

@ Chris

to Chris-Emu Oil and Rogaine

Emu oil is also a great carrier oil and helps other topical be better absorbed.
After I apply the Rogaine, I let it dry a little and then I apply some emu oil to my scalp with a q-tip. since it penetrates the scalp so completely, I am hoping it will help with Rogaine penetration.


V is located in [NA] and he is available to meet: NO

Chris

02.10.2007, 09:35

@ V

Hi v...

How are you doing these days? Thanks for the info. So by applying it with a q-tip then it doesn't make your hair look greasy? Can you buy the oil at a health food store or do you have to order it online?
Update on my progress: my hair is still shedding between 150-200 hairs after washing, so it has gone down. But I am telling you, the density is completely gone. I don't have any bald spots because my thinning is so diffuse but it is downright pathetic. If you've ever had your hair highlighted, they will take sections of hair, highlight it, flip that section over your head, then the next section, highlight it, and on and on. My hair has only about 2 sections. I'm not kidding! So if someone were to lift up my top section of hair they would see some of my scalp and a very thin layer of hair right up against my head. I don't know if I'm describing this so you can envision it but it's awful. No signs of regrowth and just passed the 3 month mark. I'm not quitting Rogaine, but am going to start on Roxelli's green smoothies and now want to try the emu oil. How are you???


Chris is located in [NA] and he is available to meet: NO

V

02.10.2007, 09:56

@ Chris

Hi v...

Yeah, I apply it with a q-tip....any other way and I look like I poured grease on my hair.:-P

I am glad to hear your shed is down. I know it may not seem like much, but it's a start, you know? I am getting ready to hit month five in my Rogaine journey, and it has only been in the past few weeks that I have seen regrowth. There isn't tons, but when I part my hair different ways, I can see those little hairs poking through. I just want to hug them and kiss them in hopes that they will multiply:-)

my shed is down, still too high I think considering, but atleast it is down from what it was. I know it will take a long time for these hairs to amount to anything, so I stay away from the mirror.

I know what you mean about density. I have none. My loss is so diffuse that I have lost just as much from the nape of my neck as I have from the top:-( . Despite that, I am still hopeful and I feel like it is still early in the game. I may not beat this but I am going tothrow everything I can in there to give it a good try!

Hang in there and keep me updated!
Hugs
V


V is located in [NA] and he is available to meet: NO

Roxeli

02.10.2007, 10:39

@ Chris

Reply to Chris

It does make your hair oily. I apply it to her scalp EVERY night. I also mix the essential oils of rosemary, basil, lavender, and lemon with the emu oil. Those herbs are known for their hair stimulating properties. The emu oil helps the essential oils to penetrate deeper. Emu oil by itself, also stimulates hair growth. It also blocks DHT and helps with inflammation.


Here's what we do. First I brush my daughter's hair with her boar bristle brush for 3 minutes. Then I part my daughter's hair with a rat tail comb in sections and apply the oils. Afterwards, I give her a scalp massage which relaxes her and helps her fall asleep. If you have a family member that can help, it would make it easier and you would find it very relaxing.


Roxeli is located in [NA] and he is available to meet: NO

Elizabeth

09.10.2007, 07:55

@ Roxeli

Reply to Chris

» It does make your hair oily. I apply it to her scalp EVERY night. I also
» mix the essential oils of rosemary, basil, lavender, and lemon with the
» emu oil. Those herbs are known for their hair stimulating properties.
» The emu oil helps the essential oils to penetrate deeper. Emu oil by
» itself, also stimulates hair growth. It also blocks DHT and helps with
» inflammation.
»
»
» Here's what we do. First I brush my daughter's hair with her boar bristle
» brush for 3 minutes. Then I part my daughter's hair with a rat tail comb
» in sections and apply the oils. Afterwards, I give her a scalp massage
» which relaxes her and helps her fall asleep. If you have a family member
» that can help, it would make it easier and you would find it very
» relaxing.

********************

Roxeli,

Do you ever buy Emu Oil Shampoo and Conditioner? I looked into it for relaxing my mustache textured, gray, colored hair which has a mind of it's own. I never bought it but it's not that expensive. I wonder if that would
help as well. I'll have to look further.....


Elizabeth is located in [NA] and he is available to meet: NO

Elizabeth

09.10.2007, 08:01

@ Elizabeth

Reply to Roxeli....

» » It does make your hair oily. I apply it to her scalp EVERY night. I
» also
» » mix the essential oils of rosemary, basil, lavender, and lemon with the
» » emu oil. Those herbs are known for their hair stimulating properties.
» » The emu oil helps the essential oils to penetrate deeper. Emu oil by
» » itself, also stimulates hair growth. It also blocks DHT and helps with
» » inflammation.
» »
» »
» » Here's what we do. First I brush my daughter's hair with her boar
» bristle
» » brush for 3 minutes. Then I part my daughter's hair with a rat tail
» comb
» » in sections and apply the oils. Afterwards, I give her a scalp
» massage
» » which relaxes her and helps her fall asleep. If you have a family
» member
» » that can help, it would make it easier and you would find it very
» » relaxing.
»
» ********************
»
» Roxeli,
»
» Do you ever buy Emu Oil Shampoo and Conditioner? I looked into it for
» relaxing my mustache textured, gray, colored hair which has a mind of it's
» own. I never bought it but it's not that expensive. I wonder if that would
» help as well. I'll have to look further.....

I did and found this site:

http://www.pure-emu-oil.com/emu-oil-product-hair-loss-kit.html

Let me know what you think....Thanks!


Elizabeth is located in [NA] and he is available to meet: NO

HairSite Admin

24.05.2008, 23:11

@ Chris

to Roxelli

Emu oil has essential fatty acids and anti inflammatory properties. These are the reasons why it may be helpful in inflammatory bowel disease like ulecerative colitis and also to some extent in hair loss.


HairSite Admin is located in [NA] and he is available to meet: NO

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atarunomiko

E-mail

SoCal,
07.07.2009, 12:15
(edited by atarunomiko, 07.07.2009, 12:21)

@ ebean

Help: After Chemo, hair grew back badly..

Hi, everyone,

I have basically the same question as ebean. I underwent chemo (AC&T like you, ebean), but I was triple negative, so I was never given Tamoxifen. In other words, my cancer was hormone-negative for both estrogen and progesterone. Does the lack of estrogen markers in my cancer make a difference for treatment for hair loss?

Like ebean, my hair never grew back fully after chemotherapy when I had aggressive breast cancer at age 28. It's now been 2 years since I finished my last round of chemo, and there has been no change. I used to have long, thick, straight, shiny hair down past my knees and received compliments wherever I went. Now I feel embarrassed even to go out and be seen in public. I hate hats and bandannas. I hate feeling like I want to hide. My self-esteem has plummeted and I feel like an old lady before my time. Looking in the mirror is a constant, heartbreaking reminder of the ordeal I suffered during chemo, surgery and radiation. I don't want to look like a supermodel. I just want to look my age again.

Roxeli, have you tried all the treatments mentioned, or just the emu oil? Has the emu oil made a noticeable difference on your daughter? How long have you/she been using it? If you've used any of the others, would you recommend those, or are you sticking to the emu oil only?

I'm having a hard time finding survivors in my age group to compare my experiences to. I hear that younger women with breast cancer ironically take the treatment even harder. I can't speak for anyone else, but with residual pain that makes moving difficult, chemo-induced menopause and still living with a chemo brain cloud, it certainly feels that way to me.

I'm so glad I found this site. Thanks so much!

EDT: I didn't realize this thread was so old. I hope someone is still around and can answer my questions or at least just commiserate. Thanks again!


atarunomiko is located in SOCAL and he is available to meet: YES
email hairsite@aol.com to arrange a meeting.

VAdogmom

31.07.2009, 00:32

@ atarunomiko

Help: After Chemo, hair grew back badly..

»
» EDT: I didn't realize this thread was so old. I hope someone is still
» around and can answer my questions or at least just commiserate. Thanks
» again!

Hello atarunomiko,
I was searching for info tonight & found this site. I'm still in treatment, but finishing my 4th and last Taxotere tomorrow. I, like you, also did 4 A/C treatments earlier. I have had several things recommended to me to help with regrowth. One of them, the Nioxin system, was suggested to me by a volunteer at my oncologist's office. I bought the 3 step starter set a few weeks ago. I can't be sure it has helped with loss during my treatment, but I do still have some hair. I plan to keep using it & hope it will help with regrowth now that I am finishing.

Also mentioned by another patient was a hair growth system called Thymuskin. From what I have read, it has been used for a number of years, was developed specifically for chemo hair loss, and is being used with some success in Europe to prevent hairloss during and after chemotherapy. I just heard about this one recently.

I plan to try whatever I can to get back my hair as best I can. I, again like you, was recognized by my hair. Compared to the hair loss, the body scars (at least to me) are negligible.

I hope you're still monitoring this. If you have any new info or suggestions, please post.


VAdogmom is located in [NA] and he is available to meet: NO

email4craigs

02.08.2009, 22:09

@ V

to Chris-Emu Oil and Rogaine

» Emu oil is also a great carrier oil and helps other topical be better
» absorbed.
» After I apply the Rogaine, I let it dry a little and then I apply some emu
» oil to my scalp with a q-tip. since it penetrates the scalp so completely,
» I am hoping it will help with Rogaine penetration.


Does this actually work? what other things have you found to be effective? Thanks!


email4craigs is located in [NA] and he is available to meet: NO

email4craigs

02.08.2009, 22:10

@ V

to Chris-Emu Oil and Rogaine

» Emu oil is also a great carrier oil and helps other topical be better
» absorbed.
» After I apply the Rogaine, I let it dry a little and then I apply some emu
» oil to my scalp with a q-tip. since it penetrates the scalp so completely,
» I am hoping it will help with Rogaine penetration.

does it work for you?
Thanks again.


email4craigs is located in [NA] and he is available to meet: NO

HairSite

Homepage E-mail

03.08.2009, 23:04

@ ebean

Help: After Chemo, hair grew back badly..

Emu is great as an inflammatory agent, there are a lot of studies for emu oil,

Research & Studies:

At Auburn University, clinical studies showed that Emu Oil can be used as a transdermal carrier and is 20 times more effective at penetrating the stratum corneum, or "skin barrier," than mineral oil.

At the Boston University Medical Center , Michael Holick and his research team confirmed numerous beneficial properties of Emu Oil, including the promotion and acceleration of skin cell regeneration and even the stimulation of hair growth.

In 1994, Dr. Alexander Zemstov conducted a "double blind" study on the properties of Emu Oil and he concluded the following properties of Emu oil: highly penetrating, emulsifier, bacteriostatic, low irritation potential, and non-comedogenic.

Composition of Emu Oil: The Micro View (1997)
By: Dr. Leigh Hopkins, AEA Oil Standards Team (Research Leader). (Reprinted from AEA News, Spring 1997 issue).

SUMMARY: When compared with human skin oil, the fatty acid composition of emu oil is found to be quite similar. In both types of oil, mono-unsaturated oleic acid is the most prevalent fatty acid, followed by palmitic acid, then linoleic acid, which is an EFA (essential fatty acid). This similarity may be one of the factors enabling emu oil to have such a positive action on human skin.

More and more companies are now conducting research using Emu oil, eg: Delta West Pharmaceuticals, Orion Laboratories, and even the American Cancer Institute where Emu Oil is being studied for its effects on the immune system and tumor biology at the cellular level.

Fatty Acid Analysis of Emu Oil. (AEA funded study, 1994)
By: Dr. Paul Smith, Dr. Margaret Craig-Schmidt, Amanda Brown at Auburn University. (Reprinted from AEA News, September 1994 Issue).

SUMMARY: Analysis of fatty acids in emu oil reveals that it contains approximately 70 % unsaturated fatty acids. The major fatty acid found in emu oil is oleic acid, which is mono- unsaturated and which comprises over 40 % of the total fatty acid content. Emu oil also contains both of the two essential fatty acids (EFA's) which are important to human health: 20 % linoleic, and 1 - 2 % alpha-linolenic acid.

Emu Oil: Comedogenicity Testing. (Study done for E.R.I., 1993)
By: Department of Dermatology, at University of Texas Medical School, Houston.

SUMMARY: Testing using the rabbit ear histological assay, with emu oil in concentrations of 25 %, 75 % and 100 % shows that emu oil in concentrations of up to 100 % is non-comedogenic, i.e. it does not clog the pores of the skin.

Moisturizing and Cosmetic Properties of Emu Oil: A Double Blind Study (1994).
By: Dr. Alexander Zemtsov, Indiana University School of Medicine: Dr. Monica Gaddis, Ball Memorial Hospital; and Dr. Victor Montalvo-Lugo, Ball Memorial Hospital. (Reprinted from AEA News, October/November 1994 issue)

SUMMARY: Eleven human subjects took part in a double-blind clinical study which compared emu oil with mineral oil in texture, skin permeability and moisturizing properties, as well as comedogenicity and irritability to the skin. No irritation to the skin was observed with either oil. However, comedogenicity of emu oil was significantly lower than that of mineral oil, and all subjects stated a unanimous preference for emu oil.

Experimental Study to Determine the Anti-Arthritic Activity of a New Emu Oil Formulation (EMMP) (1993)
By: Dr. Peter Ghosh at Royal North Shore Hospital of Sydney, Australia and Dr. Michael Whitehouse at University of Adelaide, Australia.

SUMMARY: A combination of emu oil with a suitable transdermal transporter is found to show anti-inflammatory (anti-rheumatic) activity in various rat models.

Research conducted at the Occupational Dermatology Laboratory of the University of Texas Medical School at Houston concluded that emu oil consists mostly of oleic acid, a mono-unsaturated fatty acid. The oil is highly penetrating and won't clog pores. It can help people whose skin is parched, cracked and has lost its smooth, healthy look. Beauty professionals across the country are touting the benefits of emu oil. Found in numerous cosmetics, soaps and shampoos, it has been reported that the oil also thickens aged, mature skin, making it appear younger. One study reported that 100 percent emu oil rubbed into the skin twice daily would thicken the skin by 14 percent.


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