Women Hair Loss Forums - To Gina and To Rae...

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Chris

06.10.2007, 09:58

To Gina and To Rae... (Accutane or Medications Induced Hair Loss)
Post reply

Gina, Did you go and have your endoscopy done? Was thinking about you and wondering how it went?

Rae, Did you get your test results back? I hope your doing well.

P.S. Hope you both don't think I'm being nosy.

Chris is located in [NA] and he is available to meet: NO

ginawat

06.10.2007, 10:22

@ Chris
To Gina and To Rae...
Post reply

ť Gina, Did you go and have your endoscopy done? Was thinking about you and
ť wondering how it went?
ť
ť Rae, Did you get your test results back? I hope your doing well.
ť
ť P.S. Hope you both don't think I'm being nosy.

Chris,

I don't think you are being nosey....I appreciate you asking. I cancelled the endoscopy. I was too scared. A week before the test I asked for the celiac panel blood screen and they agreed and it came back negative. My GI told me there are many false negatives and that the endoscopy (via the throat) was up to me. I was all for getting it done until someone posted (I forget who) that the drugs used to put you under (or in la-la land) can also cause hair loss. I got so consumed with worry that I waited until the night before and then called and cancelled. I have mixed emotions on whether it was the right decision. I just felt that I could not get through it with out the drugs and I was too scared to take the drugs.

This brings me to my issue with fear, worry, stress and anxiety. I am consumed with all of these and I'm trying with all my power to be strong. I just have a very hard time dealing with stress....always have. I'm most certain this plays a role in my hair issues. Everyone in my family remonds me that it is a part of my personality that has been there my whole life - prior to hair loss and probably one of the causes. They say TE can be triggered by a MAJOR stressor. Not common every day stresses - but something BIG like a death or divorce. The problem with me is I can't handle stress of ANY kind- - even daily stress that others can "roll" with - I get worked up and I can fell its effects throughout my body.

Now that I have this hair loss my stress level has been raised to an even higher level. I try and relax, calm myself, walk, meditate - but my mind will never fully rest. I am consumed by my hair loss and it is taking a toll on my whole life. Now I am even fearful of doctors and procedures. I am scared to rock the boat even more. Does that make sense?

Sorry for the long rambling post...

G

ginawat is located in [NA] and he is available to meet: NO

cinderella

08.10.2007, 02:15

@ ginawat
To Gina and To Rae...
Post reply

stress definetely builds up, you sound at your wits end like me, I am prone to anxiety and all this worry about my hair has given me anxiety attacks, I dont sleep, not eating too well and constantly have this nagging voice in my head reminding me of my problems. Going to my doc tomorrow, she will prob insist I go back on meds.

cinderella is located in [NA] and he is available to meet: NO

Rae

08.10.2007, 22:47

@ Chris
To Chris
Post reply

Thank you for asking. That is very sweet of you. I did get my ultrasound results back and they are NORMAL. I'm very pleased. However, I'm still having some very uncomfortable symptoms. So, I'm seeing a specialist in a week. It's all about ruling things out at this point.

I appreciate your concern.

Hope all is well with you.

Rae is located in [NA] and he is available to meet: NO

Chris

09.10.2007, 15:13

@ Rae
To Rae
Post reply

That is excellent news!!! I know you're still having problems, though. If you can, try to focus on the GOOD news that your tests were normal, and try to breathe a HUGE sigh of relief! I'm so happy for you!

Chris is located in [NA] and he is available to meet: NO

Pixie

11.10.2007, 14:48

@ ginawat
To Gina and To Rae...
Post reply

Gina, have you ever considered depression as one of your issues? Dysthymia is chronic, low-grade depression and I've been treated for it since 1988. You seem to have some of the symptoms and many people just suffer for years without ever knowing help is available. Look it up online and read about it, might help. You never know!

When I heard you say it was part of your personality, made me think about it. I just thought I was a grouchy worrier who was gloom and doom all the time. At least now I know there's a reason.

Best of luck.

ť ť Gina, Did you go and have your endoscopy done? Was thinking about you
ť and
ť ť wondering how it went?
ť ť
ť ť Rae, Did you get your test results back? I hope your doing well.
ť ť
ť ť P.S. Hope you both don't think I'm being nosy.
ť
ť Chris,
ť
ť I don't think you are being nosey....I appreciate you asking. I cancelled
ť the endoscopy. I was too scared. A week before the test I asked for the
ť celiac panel blood screen and they agreed and it came back negative. My
ť GI told me there are many false negatives and that the endoscopy (via the
ť throat) was up to me. I was all for getting it done until someone posted
ť (I forget who) that the drugs used to put you under (or in la-la land) can
ť also cause hair loss. I got so consumed with worry that I waited until the
ť night before and then called and cancelled. I have mixed emotions on
ť whether it was the right decision. I just felt that I could not get
ť through it with out the drugs and I was too scared to take the drugs.
ť
ť This brings me to my issue with fear, worry, stress and anxiety. I am
ť consumed with all of these and I'm trying with all my power to be strong.
ť I just have a very hard time dealing with stress....always have. I'm most
ť certain this plays a role in my hair issues. Everyone in my family
ť remonds me that it is a part of my personality that has been there my
ť whole life - prior to hair loss and probably one of the causes. They say
ť TE can be triggered by a MAJOR stressor. Not common every day stresses -
ť but something BIG like a death or divorce. The problem with me is I can't
ť handle stress of ANY kind- - even daily stress that others can "roll" with
ť - I get worked up and I can fell its effects throughout my body.
ť
ť Now that I have this hair loss my stress level has been raised to an even
ť higher level. I try and relax, calm myself, walk, meditate - but my mind
ť will never fully rest. I am consumed by my hair loss and it is taking a
ť toll on my whole life. Now I am even fearful of doctors and procedures.
ť I am scared to rock the boat even more. Does that make sense?
ť
ť Sorry for the long rambling post...
ť
ť G

Pixie is located in [NA] and he is available to meet: NO

Rae

20.10.2007, 17:03

@ Chris
To Chris
Post reply

Thanks for that..I feel like I have a host of symptoms right now. All peri-related I'm sure. I'm grateful to have this forum to sort it all out.

Chris~What are you doing right now to combat your situation? I'm still deciding about the birth control pills. I did order that Women to Women treatment. It's all so mind boggling.

Rae is located in [NA] and he is available to meet: NO

Chris 06.10.2007, 09:58	To Gina and To Rae... (Accutane or Medications Induced Hair Loss) Post reply
	Gina, Did you go and have your endoscopy done? Was thinking about you and wondering how it went? Rae, Did you get your test results back? I hope your doing well. P.S. Hope you both don't think I'm being nosy. Chris is located in [NA] and he is available to meet: NO
ginawat 06.10.2007, 10:22 @ Chris	To Gina and To Rae... Post reply
	ť Gina, Did you go and have your endoscopy done? Was thinking about you and ť wondering how it went? ť ť Rae, Did you get your test results back? I hope your doing well. ť ť P.S. Hope you both don't think I'm being nosy. Chris, I don't think you are being nosey....I appreciate you asking. I cancelled the endoscopy. I was too scared. A week before the test I asked for the celiac panel blood screen and they agreed and it came back negative. My GI told me there are many false negatives and that the endoscopy (via the throat) was up to me. I was all for getting it done until someone posted (I forget who) that the drugs used to put you under (or in la-la land) can also cause hair loss. I got so consumed with worry that I waited until the night before and then called and cancelled. I have mixed emotions on whether it was the right decision. I just felt that I could not get through it with out the drugs and I was too scared to take the drugs. This brings me to my issue with fear, worry, stress and anxiety. I am consumed with all of these and I'm trying with all my power to be strong. I just have a very hard time dealing with stress....always have. I'm most certain this plays a role in my hair issues. Everyone in my family remonds me that it is a part of my personality that has been there my whole life - prior to hair loss and probably one of the causes. They say TE can be triggered by a MAJOR stressor. Not common every day stresses - but something BIG like a death or divorce. The problem with me is I can't handle stress of ANY kind- - even daily stress that others can "roll" with - I get worked up and I can fell its effects throughout my body. Now that I have this hair loss my stress level has been raised to an even higher level. I try and relax, calm myself, walk, meditate - but my mind will never fully rest. I am consumed by my hair loss and it is taking a toll on my whole life. Now I am even fearful of doctors and procedures. I am scared to rock the boat even more. Does that make sense? Sorry for the long rambling post... G ginawat is located in [NA] and he is available to meet: NO
cinderella 08.10.2007, 02:15 @ ginawat	To Gina and To Rae... Post reply
	stress definetely builds up, you sound at your wits end like me, I am prone to anxiety and all this worry about my hair has given me anxiety attacks, I dont sleep, not eating too well and constantly have this nagging voice in my head reminding me of my problems. Going to my doc tomorrow, she will prob insist I go back on meds. cinderella is located in [NA] and he is available to meet: NO
Rae 08.10.2007, 22:47 @ Chris	To Chris Post reply
	Thank you for asking. That is very sweet of you. I did get my ultrasound results back and they are NORMAL. I'm very pleased. However, I'm still having some very uncomfortable symptoms. So, I'm seeing a specialist in a week. It's all about ruling things out at this point. I appreciate your concern. Hope all is well with you. Rae is located in [NA] and he is available to meet: NO
Chris 09.10.2007, 15:13 @ Rae	To Rae Post reply
	That is excellent news!!! I know you're still having problems, though. If you can, try to focus on the GOOD news that your tests were normal, and try to breathe a HUGE sigh of relief! I'm so happy for you! Chris is located in [NA] and he is available to meet: NO
Pixie 11.10.2007, 14:48 @ ginawat	To Gina and To Rae... Post reply
	Gina, have you ever considered depression as one of your issues? Dysthymia is chronic, low-grade depression and I've been treated for it since 1988. You seem to have some of the symptoms and many people just suffer for years without ever knowing help is available. Look it up online and read about it, might help. You never know! When I heard you say it was part of your personality, made me think about it. I just thought I was a grouchy worrier who was gloom and doom all the time. At least now I know there's a reason. Best of luck. ť ť Gina, Did you go and have your endoscopy done? Was thinking about you ť and ť ť wondering how it went? ť ť ť ť Rae, Did you get your test results back? I hope your doing well. ť ť ť ť P.S. Hope you both don't think I'm being nosy. ť ť Chris, ť ť I don't think you are being nosey....I appreciate you asking. I cancelled ť the endoscopy. I was too scared. A week before the test I asked for the ť celiac panel blood screen and they agreed and it came back negative. My ť GI told me there are many false negatives and that the endoscopy (via the ť throat) was up to me. I was all for getting it done until someone posted ť (I forget who) that the drugs used to put you under (or in la-la land) can ť also cause hair loss. I got so consumed with worry that I waited until the ť night before and then called and cancelled. I have mixed emotions on ť whether it was the right decision. I just felt that I could not get ť through it with out the drugs and I was too scared to take the drugs. ť ť This brings me to my issue with fear, worry, stress and anxiety. I am ť consumed with all of these and I'm trying with all my power to be strong. ť I just have a very hard time dealing with stress....always have. I'm most ť certain this plays a role in my hair issues. Everyone in my family ť remonds me that it is a part of my personality that has been there my ť whole life - prior to hair loss and probably one of the causes. They say ť TE can be triggered by a MAJOR stressor. Not common every day stresses - ť but something BIG like a death or divorce. The problem with me is I can't ť handle stress of ANY kind- - even daily stress that others can "roll" with ť - I get worked up and I can fell its effects throughout my body. ť ť Now that I have this hair loss my stress level has been raised to an even ť higher level. I try and relax, calm myself, walk, meditate - but my mind ť will never fully rest. I am consumed by my hair loss and it is taking a ť toll on my whole life. Now I am even fearful of doctors and procedures. ť I am scared to rock the boat even more. Does that make sense? ť ť Sorry for the long rambling post... ť ť G Pixie is located in [NA] and he is available to meet: NO
Rae 20.10.2007, 17:03 @ Chris	To Chris Post reply
	Thanks for that..I feel like I have a host of symptoms right now. All peri-related I'm sure. I'm grateful to have this forum to sort it all out. Chris~What are you doing right now to combat your situation? I'm still deciding about the birth control pills. I did order that Women to Women treatment. It's all so mind boggling. Rae is located in [NA] and he is available to meet: NO